Having Agency Over Your Own Life

Having Agency Over Your Own Life: A Perspective on Neurodiversity

Agency is the capacity to make choices, take control of one’s own life, and act according to one’s values, beliefs, and desires. It encompasses a sense of autonomy and self-determination, where individuals have an active role in shaping their futures and responding to life’s challenges. For people with neurodiversity diagnoses—such as autism, ADHD, dyslexia, and others—achieving a sense of agency can present unique challenges, as societal structures and expectations often fail to accommodate their needs or strengths. Yet, with appropriate support and strategies, neurodiverse individuals can cultivate agency, leading to a more empowered, fulfilling life.

One essential component in building agency for neurodiverse individuals is self-awareness. Self-awareness enables individuals to understand their unique neurological makeup, strengths, and challenges. Recognising and accepting one’s neurodiversity allows individuals to communicate their needs more effectively and develop coping strategies. For instance, a person with ADHD may find it challenging to focus for extended periods but might excel in creative problem-solving. By understanding their own needs, they might adopt techniques like using timers for short work intervals or creating a stimulating work environment to enhance focus. Through self-awareness, neurodiverse individuals gain clarity on their strengths and limitations, which is crucial in making informed decisions and advocating for themselves.

Another important aspect of fostering agency is access to accommodations and tools that empower neurodiverse individuals. Such tools might include assistive technology for someone with dyslexia, structured routines for someone with autism, or medication management and organisational aids for someone with ADHD. When neurodiverse people have access to resources that mitigate their challenges, they can more confidently engage in daily tasks, personal development, and goal-setting. For example, using voice-to-text software may allow someone with dyslexia to express their thoughts without the barrier of spelling or writing difficulties. Accommodations like these can serve as foundational supports, enhancing neurodiverse individuals' capacity to direct their lives and achieve their goals.

Support systems, both formal and informal, also play a critical role in enhancing agency. Family members, friends, educators, therapists, and support groups can offer encouragement and guidance, helping neurodiverse individuals navigate challenges. A supportive network provides a safe space to explore and affirm personal choices, empowering individuals to take risks and pursue goals they might have otherwise avoided. For example, a mentor familiar with neurodiversity can offer advice on managing workplace dynamics, setting boundaries, or advocating for accommodations, helping build confidence and self-determination.

However, when agency is limited or removed, negative consequences often arise. Without a sense of agency, neurodiverse individuals may feel powerless or dependent on others for decisions that affect their lives. This lack of autonomy can lead to feelings of frustration, low self-esteem, or even depression. For instance, if a neurodiverse person is denied necessary accommodations or dismissed by authority figures, they may feel inadequate or incapable, reinforcing negative self-beliefs. In extreme cases, the erosion of agency can contribute to a learned helplessness, where individuals feel that their actions have little impact on their lives, leading them to give up on aspirations altogether.

In conclusion, fostering agency in neurodiverse individuals is essential for their well-being and growth. By developing self-awareness, accessing supportive tools, and building a robust support network, neurodiverse people can navigate life with a stronger sense of control and purpose. The consequences of lacking agency are significant, underscoring the importance of empowering all individuals, regardless of neurodiversity, to be active agents in their lives.